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Challenges in Conversational Agents to support Informal Caregivers of People with Dementia

https://doi.org/10.15514/ISPRAS-2023-35(1)-2

Abstract

People who have dementia (PwD) experience deteriorating executive functions, in particular their working memory, and therefore find it hard to complete multistep tasks or activities of daily living. There is no doubt that during the pandemic, PwD and their caregivers were particularly vulnerable, often isolated which affected their mental and physical health. Their ability to live independently was hampered, fomenting depression in the PwD and burnout on informal caregivers. Information technology can support dementia care improving the quality of life of PwD and easing the burden on caregivers. There is an increasing demand to support informal caregivers and improve their well-being by making dementia challenges less severe. This study uses qualitative techniques to design a model with technological strategies based on semi-structured interviews applied to seven informal caregivers from two different countries. Based on these interviews we developed design insights for implementing solutions to help informal caregivers take care of their PwD at home using conversational agents. We hope that the findings presented in this study will help researchers, and developers design solutions that can support PwD and informal caregivers.

About the Authors

Samantha JIMÉNEZ
Instituto Tecnológico de Tijuana
Mexico

Doctor of Science, Full Professor



Jesús FAVELA
Centro de Investigación Científica y de Educación Superior de Ensenada
Mexico

Ph.D., Professor, Computer Science Department



Ángeles QUEZADA
Instituto Tecnológico de Tijuana
Mexico

Ph.D. in Computer Science



Raj RAMACHANDRAN
University of the West of England
United Kingdom

Lecturer in Computer Science



Reyes JUÁREZ-RAMÍREZ
Universidad Autónoma de Baja California
Mexico

Doctor of Computer Science, Full Professor



References

1. Boyd H.C., Evans N.M. et al. Using simple technology to prompt multistep tasks in the home for people with dementia: An exploratory study comparing prompting formats. Dementia, vol. 16, issue 4, 2017, pp. 424-442.

2. Kelly P.A., Cox L.A. et al. The effect of PARO robotic seals for hospitalized patients with dementia: A feasibility study. Geriatric Nursing, vol. 42, issue 1, 2021, pp. 37-45.

3. Wójcik D., Szczechowiak K. et al. Informal dementia caregivers: Current technology use and acceptance of technology in care. International Journal of Environmental Research and Public Health, vol. 18, issue 6, 2021, pp. 1-14.

4. Guan C., Bouzida A., Oncy-Avila R.M. Taking an (embodied) cue from community health: Designing dementia caregiver support technology to advance health equity. In Proc. of the Conference on Human Factors in Computing Systems, 2021, article no. 655, 16 p.

5. Huelat B., Pochron S.T. Stress in the Volunteer Caregiver: Human-Centric Technology Can Support Both Caregivers and People with Dementia. Medicina (B Aires), vol. 56, issue 6, 2020, article no. 257, 17 p.

6. Ruggiano N., Brown E.L et al. Chatbots to support people with dementia and their caregivers: Systematic review of functions and quality. Journal of Medical Internet Research, vol. 23, issue 6, 2021, article no. e25006, 11 p.

7. Chung K. Elderly Users’ Interaction with Conversational Agent. In Proc. of the 7th International Conference on Human-Agent Interaction, 2019, pp. 277-279.

8. Houben M., Brankaert R. et al. Foregrounding everyday sounds in dementia. In Proc. of the 2019 ACM Designing Interactive Systems Conference, 2019, pp. 71-83, 2019.

9. Brown E.L., Ruggiano N. et al. Smartphone-Based Health Technologies for Dementia Care: Opportunities, Challenges, and Current Practices. Journal of Applied Gerontology, vol. 38, issue 1, 2019, pp. 73-91.

10. Yang L., Ye H., Sun Q. Family caregivers’ experiences of interaction with people with mild-to-moderate dementia in China: A qualitative study. International Journal of Nursing Practice, vol. 27, issue 4, 2021, pp. 1-8, 2021, article no. e12892, 8 p.

11. Cha I., Kim S. et al. Exploring the Use of a Voice-based Conversational Agent to Empower Adolescents with Autism Spectrum Disorder. In Proc. of the 2021 Conference on Human Factors in Computing Systems, 202, article no. 42, 15 p.

12. Choi Y.K., Thompson H.J., Demiris G. Internet-of-Things Smart Home Technology to Support Aging-in-Place: Older Adults’ Perceptions and Attitudes. Journal of Gerontological Nursing, vol. 47, issue 4, 2021, pp. 15-21.

13. Apergi L.A., Bjarnadottir M.V. et al. Voice Interface Technology Adoption by Patients With Heart Failure: Pilot Comparison Study. JMIR Mhealth Uhealth, vol. 9, issue 4, 2021, article no. e24646, 15 p.

14. Kim S. Exploring How Older Adults Use a Smart Speaker–Based Voice Assistant in Their First Interactions: Qualitative Study. JMIR Mhealth Uhealth, vol. 9, issue 1, 2021, article no. e20427, 12 p.

15. Ault L., Goubran R. et al. Smart home technology solution for night-time wandering in persons with dementia. Journal of Rehabilitation and Assistive Technologies Engineering, vol. 7, 2020, article no. 205566832093859, 8 p.

16. Smith E., Sumner P. et al. Smart speaker devices can improve speech intelligibility in adults with intellectual disability. International Journal of Language & Communication Disorders, vol. 56, issue 3, 2021, pp. 583-593.

17. Li J., Maharjan B. et al. A personalized voice-based diet assistant for caregivers of Alzheimer disease and related dementias: System development and validation. Journal of Medical Internet Research, vol. 22, issue 9, 2020, article no. e19897, 11 p.

18. Russo A., D'Onofrio G. et al. Dialogue Systems and Conversational Agents for Patients with Dementia: The Human–Robot Interaction. Rejuvenation Research, vol. 22, issue 2, 2019, pp. 109-120.

19. Navarro R.F., Rodríguez M.D., Favela J. Intervention tailoring in augmented cognition systems for elders with dementia. IEEE Journal of Biomedical and Health Informatics, vol. 18, issue 1, 2014, pp. 361-367.

20. Schumacher C., Dash D. et al. A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model. BMC Geriatrics, vol. 21, issue 1, 2021, article no. 295, pp. 1–11, 2021, 11 p.

21. Braun V., Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology, vol. 3, issue 2, 2006, pp. 77-101.

22. Connors M.H., Seeher K. et al. Dementia and caregiver burden: A three-year longitudinal study,” International Journal of Geriatric Psychiatry, vol. 35, issue 2, 2020, pp. 250-258.


Review

For citations:


JIMÉNEZ S., FAVELA J., QUEZADA Á., RAMACHANDRAN R., JUÁREZ-RAMÍREZ R. Challenges in Conversational Agents to support Informal Caregivers of People with Dementia. Proceedings of the Institute for System Programming of the RAS (Proceedings of ISP RAS). 2023;35(1):25-34. https://doi.org/10.15514/ISPRAS-2023-35(1)-2



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ISSN 2079-8156 (Print)
ISSN 2220-6426 (Online)